If you're a masochist
Published on October 19, 2005 By Chaos Manager In Blogging

Okay, just a word up front.  This is a whine/rant/venting article.  If you're not interested, please feel free to ignore this.

Having said all of that ...

Lately, I've been dealing with some odd health issues.  For the last couple of weeks, I've been going through strange symptoms.  I've got weakness (and general aches) in my legs (primarily the hips, knees and ankles, and it's bi-lateral).  I've got issues with being in the sun (after more anything more than a couple minutes out in direct sunlight, my hands swell and my face gets red and rash-like).  I've got bad arthritis like pains in my back, feet, hips and knees.  My energy levels are completely non-existent.  I have difficulty getting started in the mornings, but once I get going ... I'm good until about 2 - 4 PM (varies from day to day).  Then, it's like someone flipped a switch and cut the generator's off.  I get to where I can barely walk, can't think straight and can barely lift my head sometimes.  I feel like I could fall asleep at my desk.  On top of all of this I seem to be running periodic, low grade fevers.  Nothing dangerous (or overly noticeable most of the time).  I'm just a little warmer to the touch than is normal for me.  My core body temp is 98.1 degrees.  When I'm healthy, it doesn't vary from this.  Over the last couple weeks, it's been in the 99 - 100 range, fairly consistently. 

Now, I have seen my doctor about this.  His initial guess is lupus or Rheumatoid arthritis.  He took some blood for tests on Monday.  So far, there's been no word from him or his office on what the results can be.

What worrys me is this:  I fear that he is correct.  I had a bout of similar symptoms a couple years ago, that were pretty much ignored.  After several weeks, the symptoms faded.  Now, they're back.  With a vengeance.  During the previous episode, the blood tests came back inconclusive (according to the docs).  Tests for RF (Rheumatoid Factor) were negative, but as my mother proves, that's not always conclusive (anywhere from 10 - 20 percent of all people w/ RA display a negative RF in the bloodtests).  The ANA test was borderline (~ 1:400 titer with a speckled pattern).  The Anti-Sp and Anti-Rho tests weren't performed (why, I don't know, but they weren't).

So, it's getting more and more difficult to move around.  Being a male, 31 (for another month at least), diabetic and being 80 pounds overweight, doesn't help. 

So, if you see/hear me rambling (even more so than normal) for the next week or so, don't mind me.  It's only the steroids talking.  For some reason, Prednisone (and most corticosteroids) mess with my mind and make the already present depression, even worse. 

So, 'til next time...

Cheers!


Comments
on Oct 19, 2005
Sounds to me like you have classic RA and/or Lupus symptoms. As LW said, she's got it, as does Karma. MY Aunt has it too, and she started out with the exact same symptoms you have.

I'm sorry, dude.
on Oct 19, 2005
LW:
Keep us updated...

No problem there. This is as good a place to vent, as any.
The best pain relief I've found so far, believe it or not, is a triple dose Aleve, and when that's not enough, I add a couple of 5mg oxycodones to that

I don't normally use naproxyn (but it does work for me). Ibuprofen in 800mg doses (upto 2400mg/day) does take the edge off. Unfortunately, that helps the aches and pain (and to some extent the swelling and stiffness), but it doesn't do a blasted thing for the weakness and exhaustion. It took everything I could do just to tuck my little girl into bed, last night.

Gah! It's a (literal) pain to walk up stairs.

I'd take the oxycodone, but a) don't have any and me and narcotics don't go well together. My big concern there would be the possible ramifications with my security clearance.

Why are you taking steroids, if you don't mind me asking? I know they are sometimes prescribed for R/A, but you said you havent had a postive test result yet, and they usually try other, safer drugs first, like Plaquenil or Methotrexate.


He didn't want to put me on anything stronger/more specific until he's got the blood work back. His statement was "I usually start with steroids." Nothing longterm, just initial relief of the systems. Tapered dosage of Prednisone. It's worked in the past for gout flareups.

dharmagrl:
Sounds to me like you have classic RA and/or Lupus symptoms. As LW said, she's got it, as does Karma. MY Aunt has it too, and she started out with the exact same symptoms you have.

Yeah. I know. My doc is very familiar with the symptoms. His grandmother has both Lupus and R/A and his sister has Lupus, so he is very aware of the possibilities. There wasn't much doubt about something being there, it's just a matter of officially pinning one label or another (but he's treating it anyways before they come back).

on Oct 19, 2005
dharmagrl:
I'm sorry, dude.


Hehe. I'll tell you the same thing I tell my wife at times like these ... "Why? It's your fault."

Of course, I understand why. And thank you.
on Oct 19, 2005
Sorry CM.  I would never want to be in your shoes.  But vent away.  As you saw, Whip and a couple of others know what you are going through, and can help.  The rest can just give you a pat on the back and our moral support.
on Oct 19, 2005
Thanks, Doc.

My wife has gotten to the point where she just says "Don't want to hear it", though she pretends to listen, anyways.

So, look for more of the same here, as I use this as a place to rant/vent.
on Oct 19, 2005
Hi Chaos
Sorry you're not feeling well. Is the Rhuematoid factor the same as the "sed rate"? The sed rate is usually elevated with RA
although mine wasn't the first time they tested me. I know you feel rotten, I just wouldn't wish RA on anyone! hope you don't have it.

Little Whip was right about me. I was diagnosed with RA in July of 91.
Just for the record: One Thursday night I was super tired, the next night I couldn't lift my right hand, the third night
I couldn't lift my left hand and by Sunday morning I couldn't raise either arm or hand and had to have my sister dress me.

There ARE over 100 kinds of arthritis, it's pretty staggering!
Here's hoping you feel better soon!